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行走在吞咽困难的钢丝上：来自澳大利亚从事儿童和青少年工作的相关健康专业人员的见解。

Walking the tightrope of dysphagia: insights from allied health professions working with children and young people in Australia.

临床研究咽喉科IF 2.9Q2

文献信息

PMID42897976
原文在 PubMed 查看原文 ↗
发表日期2026
作者Rebecca Smith
查看其他 3 位作者

Caroline Mills；Catharine A K Fleming；Elise Baker

作者单位School of Health Sciences, Western Sydney University, Campbelltown, NSW, Australia.
查看其他 5 条单位信息

Translational Health Research Institute, Western Sydney University, Campbelltown, NSW, Australia.；South Western Sydney Local Health District, Liverpool, NSW, Australia.；School of Medicine, Western Sydney University, Campbelltown, NSW, Australia.；Ingham Institute for Applied Medical Research, Liverpool, NSW, Australia.；Transforming Early Education and Child Health Centre, Western Sydney University, Campbelltown, NSW, Australia.

期刊Disability and rehabilitation
SCI 分区Q2
IF2.9
研究类型临床研究 · 临床
所属专科咽喉科

中文摘要

目的： 吞咽困难会对儿童或青少年的生活质量产生负面影响。目前缺乏深入的定性数据，从提供支持并可能影响其生活质量的相關健康专业人员的视角，考察吞咽困难对儿童和青少年的影响。本研究考察了相關健康专业人员对以下方面的看法：(a) 吞咽困难对生活质量的影响，以及 (b) 患有吞咽困难的儿童和青少年（2-24岁）生活质量的障碍和促进因素。
方法： 在这项经伦理批准的研究中，16名相關健康专业人员参与了焦点小组讨论。录像讨论被逐字转录，然后使用主题网络分析进行分析。
结果： 确定了一个全球主题、三个组织主题和12个基本主题。管理吞咽困难就像走钢丝。参与者描述了平衡各种因素，包括儿童的医学诊断与其自主权、家庭，以及创造积极的进餐时间同时尽量减少伤害。参与者描述了吞咽困难的级联影响，影响儿童或青少年及其周围的家庭。
讨论： 卫生专业人员需要与家庭合作，提供个体化教育，并倡导平衡儿童或青少年的身体和心理社会需求。

英文摘要

PURPOSE: Dysphagia can negatively influence a child or young person's quality of life. There is currently limited in-depth qualitative data examining the impacts of dysphagia on children and young people from the perspectives the allied health professionals who provide supports that can shape their quality of life. This study examined the perspectives of allied health professionals on (a) the impact of dysphagia on quality of life and (b) barriers and facilitators to quality of life for children and young people (2-24 years) with dysphagia.
METHODS: In this ethically approved research, 16 allied health professionals engaged in focus group discussions. Video recorded discussions were transcribed verbatim then analyzed using Thematic Networks Analysis.
RESULTS: One global theme, three organizing themes, and 12 basic themes were identified. Managing dysphagia was like walking a tightrope. Participants described balancing various factors including the child's medical diagnoses versus their autonomy, the family, and creating positive mealtimes while minimizing harm. Participants described cascading impacts of dysphagia impacting on the child or young person and their family around them.
DISCUSSION: Health professionals need to collaborate with families, provide individualized education and advocate for balance of the physical and psychosocial needs of the child or young person.