流涎对帕金森病患者生活的影响

文献信息

中文摘要

目的： 本研究探讨了流涎（也称为唾液分泌过多）对帕金森病患者生活造成的社交、情感和身体影响。
方法： 对11名帕金森病患者进行了半结构化访谈。年龄范围为51至85岁，其自报的流涎严重程度各不相同。对访谈转录文本进行了主题分析。
结果： 流涎因情境和情绪因素而加重，并对参与者生活的许多方面产生了显著影响。流涎影响了情绪、自我认知、他人看法、活动与参与以及人际关系。这些影响之间的关系是复杂的。讨论了缺乏合适的治疗方案和管理策略，并且报告称针对流涎的专业健康支持缺乏或没有帮助。
结论： 本研究表明，流涎对帕金森病患者的生活具有显著的情感、社交和身体影响。因此，言语语言病理学家应将管理流涎纳入其针对帕金森病相关吞咽困难的治疗计划中。缺乏合适的治疗方案表明需要进一步研究更全面和可持续的流涎治疗方案。

英文摘要

PURPOSE: This study explored the social, emotional, and physical impacts that drooling, also referred to as sialorrhea, has on the lives of people with Parkinson's disease.
METHOD: Semi-structured interviews were conducted with 11 people with Parkinson's disease. Ages ranged from 51-85 years, and their self-reported drooling severities were varied. A thematic analysis of interview transcripts was conducted.
RESULT: Drooling was exacerbated by both situational and emotional factors and had a significant impact on many aspects of participants' lives. Drooling impacted emotion, perceptions of self, others' perceptions, activities and participation, and relationships. The relationship between these impacts was complex. A lack of suitable treatment options and management strategies were discussed and the health professional support provided for drooling was reported to be lacking or not useful.
CONCLUSION: This study indicates that drooling has a significant emotional, social, and physical impact on the lives of people with Parkinson's disease. Therefore, speech-language pathologists should include managing drooling in their treatment plan for swallowing difficulties related to Parkinson's disease. The lack of suitable treatment options warrants the need for further research into more holistic and sustainable treatment options for drooling.