父母对脑瘫儿童喂养困难的看法：一项定性研究。
Parental Perspectives on Feeding Challenges in Children With Cerebral Palsy: A Qualitative Study.
文献信息
| PMID | 42770837 |
|---|---|
| 原文 | 在 PubMed 查看原文 ↗ |
| 发表日期 | 2026 |
| 作者 | Halime Pulat Demir |
| 作者单位 | Department of Nutrition and Dietetics, Faculty of Health Science, Istanbul Beykent University, Istanbul, Turkey. |
| 期刊 | Child: care, health and development |
| SCI 分区 | Q2 |
| IF | 2.6 |
| 研究类型 | 临床研究 · 临床 |
| 所属专科 | 咽喉科 |
中文摘要
目的： 本研究旨在探讨土耳其社会文化和医疗保健背景下，脑瘫（CP）儿童的母亲在喂养困难方面的生活体验及其所采用的应对策略。
方法： 对26名在土耳其一所大学附属康复中心接受治疗的CP儿童的母亲进行半结构化访谈，并采用主题分析。数据收集于2024年7月至8月进行，并以《定性研究报告标准》为指导。MAXQDA 2024软件协助进行数据组织和编码。
结果： 出现了三个主要主题：（1）从诊断到第一口食物：CP诊断历程如何塑造早期喂养体验，（2）喂养困难与策略，以及（3）获得专业和支持服务。母亲们报告了吞咽问题、食欲差和经济障碍等困难。适应性策略包括改变食物质地、调整进餐结构和限制垃圾食品。许多人强调需要营养教育和改善获得专业服务的机会。
结论： 研究结果凸显了CP儿童母亲所面临喂养困难的多面性，包括与口运动功能障碍、拒食、经济限制和获得专业支持服务有限相关的困难。这些经历强调需要早期、多学科和以家庭为中心的干预措施，以及改善照护家庭获得营养教育和专业指导的机会。
英文摘要
PURPOSE: This study aimed to explore the lived experiences of mothers of children with cerebral palsy (CP) regarding feeding challenges and the coping strategies they employ within the Turkish socio-cultural and healthcare context.
METHODS: Thematic analysis was conducted on semi-structured interviews with 26 mothers of children with CP receiving treatment at a university-affiliated rehabilitation centre in Turkey. Data collection occurred between July and August 2024 and was guided by the Standards for Reporting Qualitative Research. MAXQDA 2024 software facilitated data organization and coding.
RESULTS: Three main themes emerged: (1) From Diagnosis to the First Bites: How the CP Diagnostic Journey Shaped Early Feeding Experiences, (2) Feeding Challenges and Strategies and (3) Access to Professional and Support Services. Mothers reported difficulties such as swallowing problems, poor appetite and financial barriers. Adaptive strategies included modifying food textures, restructuring meals and limiting junk food. Many emphasized the need for nutrition education and improved access to professional services.
CONCLUSION: The findings highlight the multifaceted nature of feeding challenges faced by mothers of children with CP, encompassing difficulties related to oral-motor dysfunction, food refusal, financial constraints and limited access to professional support services. These experiences underscore the need for early, multidisciplinary and family-centred interventions, as well as improved access to nutrition education and professional guidance for caregiving families.